​Advocating for Sickle Cell Patients and Caregivers

Established in 2013 to address the needs of the Sickle Cell community of 24 counties throughout Southern Indiana.

Now as of 2017, serving more than 30 counties across Indiana and the Midwest.

SCACURE stands for "Sickle Cell Anemia CURE"  which is consistent with the organization's advocacy efforts to educate, engage, and empower those affected by Sickle Cell Disease and other hemoglobinopathies.

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Join SCACURE in congratulating the Martin Center on 50 years of service to the Central Indiana community!

Save the Date for this event!

Gant-Johnson Legacy: We are all better educated, more engaged, and truly empowered to make a difference

         Karen D. Gant-Johnson started her sickle cell journey, January 5, 1990 at the Martin Center Sickle Cell Center under the leadership of then Executive Director, Mr. Robert Treadwell, as a data entry clerk entering all sickle cell disease and trait client information into the new database. After 4 years at the company, she was promoted to Assistant to the Executive Director providing administrative and bookkeeping support for the Center.

         In 1998, under the new Executive Director, Susie Davie, Karen was asked to oversee the Client Support Department as the Client Support Manager, a liaison role to the Center’s clientele, providing case management plans for each family affected by Sickle Cell Disease. In this role, she was also responsible for ensuring client satisfaction, organizational effectiveness, program development, and constituent growth according to the strategic plan.

         Around 2011, under the new leadership of the Martin Center, President and CEO Gary Gibson, Karen transitioned to the role of Sickle Cell Program Director. This entailed a wide range of duties related to Sickle Cell Disease, Trait, and associated blood disorders’ education. She supervised other staff members to ensure training and education to caregivers, educators, health care providers, and communities in designated geographic areas, paying attention to those communities at highest risk. She also educated persons and their family members with Sickle Cell Disease, Trait, and associated disorders in accordance with disease management programs.  

        In 2012 Karen’s tenure at the Martin Center ended and SCACURE Networks, Inc. was very fortunate that her love for this work prompted her to join our team. Karen was instrumental in the organizational launch and served as the Client Services Director. In this time, she was responsible for the Newborn Screening Follow-up program, including data collection, mailings, primary care providers education, client education and advocacy, and regional education in the southern counties of Indiana.

        October 31, 2019 Karen elected to retire. In nearly 30 years, she built quite the legacy of service, support, and friendship with patients and families, medical providers and other non-profit organizations and educators, government organizations and the general community. Karen’s passion, compassion, knowledge and wisdom were gifts to all whom she met; even her well-coordinated attire brought joy and smiles! Karen Gant-Johnson will be deeply missed on the front lines of our network. All she touched is now better educated, more engaged, and truly empowered to make a difference in the lives of those afflicted by Sickle Cell disease. With a heartfelt thank you and a bear hug, on behalf of SCACURE, I wish you all the best in your retirement Karen; you’re welcome to join us at “network” events any time!


In high regard & respect,

Jacquelyn Robinson

Founder, Advocate, & Educator